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The race benefited the National Marfan Foundation. 75% of the race registration fees will be donated to the organization.
The event was in memory of Laura Coughlan Siqueiros , the wife of fellow Sole Runner mentor, John Siqueiros, and in honor of a young man, Ethan Johns.
Laura had planned this race to share Ethan's Marfan syndrome story but unfortunately, she passed away from Marfan syndrome complications earlier this year.
Marfan syndrome is a genetic disorder of the connective tissue that can affect the skeleton, eyes, heart and blood vessels.
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Possible Symptoms of Marfan Syndrome
Heart and Blood Vessels (Cardiovascular system)
- Enlarged or bulging aorta, the main blood vessel that carries blood from the heart (aortic dilation or aneurysm)
- Separation of the layers of the aorta that can cause it to tear (aortic dissection)
- “Floppy” mitral valve (mitral valve prolapse – MVP)
- Long arms and legs
- Tall and thin body type
- Curvature of the spine (scoliosis or kyphosis)
- Chest sinks in (pectus excavatum) or sticks out/pigeon breast (pectus carinatum)
- Long, thin fingers
- Flexible joints
- Flat feet
- Teeth that are too crowded
- Eyes (Ocular system)
- Severe nearsightedness (myopia)
- Dislocated lens of the eye
- Detached retina
- Early glaucoma
- Early cataracts
- Stretch marks on the skin, not explained by pregnancy or weight gain
- Sudden collapse of the lung (spontaneous pneumothorax)
- Swelling of the sac around the spinal column (dural ectasia). This is found with CT or MRI scans of the back
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The morning started off chilly but as the race time approached, it really warmed up.
The scenic race course was along the Long Beach Shoreline Pedestrian Bikepath.
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The aide stations were Halloween themed complete with trick-or-treat baskets filled with treats.
It made my day when I was able to snack on a Reese's at Mile 1.
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Wonderful story...
ReplyDeleteI learned a lot and nice job participating. Cute medal too.
ReplyDeleteGreat race and such a good cause. Thanks for all the info. Well done Green Girl!
ReplyDeleteWhat a great cause to race for...and the reese's was a bonus! : )
ReplyDeleteYou have the biggest heart! Way to go, Greenie...miss you tons! We got to catch up!
ReplyDeletexo
I haven't heard of this condition before - thanks for sharing the information and the wonderful story.
ReplyDeleteThat race medal is really neat - and how fun to eat candy at the way points!
Running for a cause is so rewarding. Congrats to you and a very nice post.
ReplyDeleteGreat cause!
ReplyDeleteI have a cousin that was mis-diagnosed with Marfans about 8 years ago. I remember hearing how he could not exercise and that his heart could stop at any moment. He lived for 7 years thinking he had it....... extensive testing proved the diagnosis wrong last year. It was a huge relief.
I'm glad to hear that your race was raising money for research.
Love the medal!!