The race benefited the National Marfan Foundation. 75% of the race registration fees will be donated to the organization.
The event was in memory of Laura Coughlan Siqueiros , the wife of fellow Sole Runner mentor, John Siqueiros, and in honor of a young man, Ethan Johns.
Laura had planned this race to share Ethan's Marfan syndrome story but unfortunately, she passed away from Marfan syndrome complications earlier this year.
Marfan syndrome is a genetic disorder of the connective tissue that can affect the skeleton, eyes, heart and blood vessels.
Possible Symptoms of Marfan Syndrome
Heart and Blood Vessels (Cardiovascular system)
- Enlarged or bulging aorta, the main blood vessel that carries blood from the heart (aortic dilation or aneurysm)
- Separation of the layers of the aorta that can cause it to tear (aortic dissection)
- “Floppy” mitral valve (mitral valve prolapse – MVP)
- Long arms and legs
- Tall and thin body type
- Curvature of the spine (scoliosis or kyphosis)
- Chest sinks in (pectus excavatum) or sticks out/pigeon breast (pectus carinatum)
- Long, thin fingers
- Flexible joints
- Flat feet
- Teeth that are too crowded
- Eyes (Ocular system)
- Severe nearsightedness (myopia)
- Dislocated lens of the eye
- Detached retina
- Early glaucoma
- Early cataracts
- Stretch marks on the skin, not explained by pregnancy or weight gain
- Sudden collapse of the lung (spontaneous pneumothorax)
- Swelling of the sac around the spinal column (dural ectasia). This is found with CT or MRI scans of the back
The morning started off chilly but as the race time approached, it really warmed up.
The scenic race course was along the Long Beach Shoreline Pedestrian Bikepath.
The aide stations were Halloween themed complete with trick-or-treat baskets filled with treats.
It made my day when I was able to snack on a Reese's at Mile 1.